Long-Term GIST Survivors Share Advice
Long-term GIST survivors shared insights on expert care, self-advocacy, and the power of community while living with GIST.
What 19 Years With GIST Has Taught Me
Ed shares his 19-year survivor journey of resilience, multiple surgeries, evolving treatments with the support of family, expert doctors, and advocacy resources that helped him continue moving forward with hope.
Long-Term Survivor Webinar
Long-term LRG survivors share real-life advice, lessons learned, and what they wish they had known after their GIST diagnosis.
Remembering a Great Friend to the LRG – Chuck Korte
To so many in our community, Chuck was a beacon of hope. He was one of the very few long-term survivors from the original Gleevec (STI-571) clinical trial, which he joined in 2001. For [...]
New Horizons – Long-term GIST Survivor Story
Chuck Korte presented his story as Long-term GIST Survivor at New Horizons 2021.
Conversations with the LRG: Long-Term Survivors
On May 4th the LRG held a lively discussion with three long-term survivors, Erin McBean, John Abrams, and Dr. mOe Anderson. Diagnosed at different stages of life, with different mutations, these GISTers shared how they have thrived with GIST over ten years and counting.
April Stephens, Long-Term Survivor
The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.
Long-Term Survivor Stories – Chuck Korte & Dina Wiley
For GIST patients, long term survival is the ultimate goal. A number of factors may influence long term survival – some of these are demographic and clinical, like mutational subtype and genetic factors. However, there are a number of others that are perhaps more subtle, such as lifestyle, attitude, and access to treatment, experts, and advice.
John Poss: Fifteen Years and Still Kickin’
It has been a long journey since that day Melinda and I walked out of my Dallas oncologist’s office in May, 2000 knowing that I had a rare, then untreatable cancer. Now, it has [...]
Side Effects of Targeted Treatments
The side effects of traditional chemotherapy treatments are often apparent, with images of bald patients with pain-etched faces captured in photographs. For targeted therapies such as those for GIST patients and other cancers that [...]