LRG Research Team Meets in Cleveland
In early May, the LRG Research Team held a two-day in-person meeting in Cleveland, Ohio, at the Cleveland Clinic, where I conduct my research. Two primary aims of the meeting were to work on [...]
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
Cancerversary 10 Years – Josalin Dunn
Josalin Dunn is celebrating her ten year cancerversary. “Staying positive about my cancer isn’t always easy,... but I keep reminding myself that there are others who have it worse. I am blessed!”
Developing GISTKids.org
During the Life Raft Group Life Fest 2014, a panel of young GIST patients and family members gathered around a table to discuss ideas for advocating for SDH-deficient and wild type GIST. The group [...]
PAWS-GIST Cancer Clinic Opens in the UK
Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type and Syndromic GIST (PAWS GIST) clinic in the United Kingdom was held on [...]
Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board
The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]
Wildtype GIST & SDH: What to Know
Written by Jennifer Wright April, 2011 - This article is a summary of “Defects in succinate dehydrogenase in gastrointestinal stromal tumors lacking KIT and PDGFRA mutations” in the Proceedings of the National Academy of Sciences [...]
Young GISTers cross country lines to get together
My name is Stacey McAully and for those of you who don't know, I was the first pediatric diagnosis of GISTs in Scotland. I have had 2 serious surgeries and was on Gleevec for [...]