Chris Skiff Defies Odds by Running in California Marathon
When Chris Skiff was in elementary school, he “felt the urge to run.” And he has been running ever since. Even after being diagnosed with GIST.
Carrie Broussard and Her ‘Little Brave Warrior’
Carrie Broussard gave birth to a healthy baby boy on May 1, after finding out she was pregnant in the midst of treatment with Gleevec. She named him Caelum, which in the Celtic origin means ‘brave warrior’ and in the Australian origin means ‘a gift.”
GIST patient shares her experience with Hospital
LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.
Who’s laughing now? Actress Mo Collins uses humor in her battle with GIST
Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.
Family planning with GIST can be a hard decision
Family planning can be one of the hardest decisions patients with GIST make, but for Carolina Ponce Williams the decision was easy. At high risk for progression, Carolina longed to start a family. So she decided to adopt.
Pediatric GIST Patient Welcomes Baby Boy!
Pediatric GIST patient Jason DeLorenzo welcomes a baby boy! Jill and Jason welcomed their firstborn son and first child, Simon Joseph. He was born at 6:58am on 3/24/13. 6 lbs. 11oz. 20 inches long. Simon is a wide-eyed, very attentive and curious baby.
Bulgarian GIST group increases reach
My name is Juliana Popova and I’m the chairperson of the Bulgarian support group for people with GIST – “GIST Alliance for Patients-Bulgaria”. Our organization was founded in January 2012. All patients can contact us [...]
Carol Heller to be local leader in Eastern Pennsylvania
Carol Heller will be working with Jeff Bernstein to cover the state of Pennsylvania as local group leaders. She is very excited to help and hold meetings, and will be handling the eastern region of [...]
Pediatric GISTer ties the knot!
Jason DeLorenzo, LRG member and pediatric GISTer, got married on November 17, 2012 to Jill Medhus.
Dave Safford shares his list of happiest moments since GIST and those still to come
Recently, LRG Board Member Dave Safford decided to sit down and think about all of the good fortune that has come into his life since being diagnosed with cancer. We liked his list so much we decided to share it so that everyone in the GIST community can see a story of positivity and hope.