The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]
The following is a recap of the presentations and posters from the CTOS conference held in Hawaii, with commentary by David Josephy. Dr. Michael Heinrich, David Josephy and Norman Scherzer CTOS 2017 Presentations [...]
About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even [...]
On Saturday November 25, GIST Chile, together with FUCOG (Gynecological cancers) held an education session for health related students, patients and caregivers. This was the first collaborative activity in looking forward to expand our [...]
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or her own grief process in their own way, but all of us share [...]
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access [...]
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
Patient-reported outcomes is a buzz-phase that we hear a lot these days. At the Life Raft Group, I was recently in a meeting where we were discussing patient-reported outcomes, the LRG registry and patient-powered [...]
The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July 5 - 7, 2017. The Clinic is a collaborative effort between clinicians and [...]
Many people love the warm sun, beaches, and gardens, but along with those beautiful summer days comes the threat of sun damage. What does this mean for GIST patients?
