Developing GISTKids.org
During the Life Raft Group Life Fest 2014, a panel of young GIST patients and family members gathered around a table to discuss ideas for advocating for SDH-deficient and wild type GIST. The group [...]
LRG Research Team Member Anette Duensing Receives 2014 GIST Award
The GIST Group Switzerland recently awarded its Science Prize to Dr. Anette Duensing, Assistant Professor of Pathology at the University of Pittsburgh Cancer Institute, and a member of the LRG’s Research Team. GIST Group [...]
GIST 31 Wishes Coming True: Welcoming New State Leaders
Wishes do come true. As part of our GIST 31 Wishes campaign, Assistant Program Director Mildred Menos’ wish was for every state in the US to be represented with one or more LRG leaders so [...]
Life Raft Group Attends Partnering For Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees from biopharma, governmental agencies, academia, philanthropy and patient advocacy organizations came together to [...]
2015 GDOL Series Kicks off in San Diego
Dr. Jason Sicklick On Saturday, January 24, the Moores Cancer Center in sunny San Diego played host to the first of our 2015 GIST Days of Learning. Nearly fifty GIST patients, caregivers, family [...]
Dating with GIST: Navigating The Waters
Reprinted and revised from the February, 2011 LRG Newsletter. With Valentine’s Day looming, thoughts turn to relationships. There are often unrealistic expectations of the day: a dozen red roses, a satin heart filled with [...]
UK Pulls Stivarga From Cancer Drug Fund Endangering GIST Patients
The National Health Service (NHS) in the United Kingdom has announced plans to halt funding through the Cancer Drug Fund for regorafenib (Stivarga), thereby preventing GIST patients from having access to this life-saving medication.We at [...]
GIST Cancer Journal Winter Issue Out!
The Life Raft Group is pleased to announce the release of the fourth issue of The GIST Cancer Journal, the official journal of the Life Raft Group and the first academic journal devoted solely to GIST. [...]
Protein Complex Believed To Be Cancer-Causing Gene
A recent study from MD Anderson provides insight into a protein complex that plays a significant role in cancer.In the study at the University of Texas MD Anderson Cancer center, similarities were drawn between bean [...]
Clinical Registry Study Planned by ASCO
American Society of Clinical Oncology (ASCO) is planning its first-ever clinical registry study, the Targeted Agent and Profiling Utilization Registry (TAPUR). ASCO plans should increase patient access to off-label drugs and match patients with [...]