A recent comprehensive review of the literature of the PubMed database and of the clinical experiences of oncologists and dermatologists concerning patients with regorafenib (Stivarga) related hand-foot skin reaction (HFSR) was published in the [...]
Karen Darnell appreciates the value of life jackets. In her GIST journey, she recognizes the importance of having one constructed from the fabric of family support, GIST experts, email communities and the Life Raft [...]
page updated 4/9/2020 GIST patients often struggle with their diet and nutrient intake after a partial or total gastrectomy or an ileostomy. These procedures can cause trauma to the digestive system functions, deplete an [...]
In early May, the LRG Research Team held a two-day in-person meeting in Cleveland, Ohio, at the Cleveland Clinic, where I conduct my research. Two primary aims of the meeting were to work on [...]
Dr. Ron DeMatteo GIST specialist surgeon Dr. Ron DeMatteo, along with colleagues at Memorial Sloan-Kettering Cancer Center (MSKCC), has published a new paper in the April issue of Cancer Research with potentially [...]
Representatives from ten Latin American countries gathered on May 17 in Miami, Florida, for the sixth annual meeting of Alianza GIST to discuss issues related to advocacy work in their region, last year’s accomplishments [...]
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
In an online article, Peter Pitts, a former FDA associate commissioner, discussed the topic of off-label product claims by pharmaceutical companies. Off-label use in this case refers to using a medication for an intention [...]
Above Left to Right: Piga Fernandez, Health Minister Carmen Castillo Taucher, President Michelle Bachelet We reported previously on the advocacy work being in Chile to benefit patients who need high cost treatments for seriously ill [...]
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
