Patient Support

Resources For Cancer Patients And Caregivers

Comprehensive resources for cancer patients and caregivers can be found on Patient Resource’s website. This is valuable information, not only for GIST patients, but also for those who may have friends and loved ones with other diagnoses.

By |2018-09-12T16:11:54-04:00August 29th, 2014|Coping with GIST, GIST Education, News, Patient Support|

Cancer and Intimacy: Nurturing Relationships

All relationships have to weather storms, but when a couple faces the challenges of cancer treatment, intimacy can suffer. Intimacy can be difficult for any couple, but cancer and intimacy can be an even larger obstacle.

By |2019-09-20T14:40:40-04:00August 25th, 2014|Coping with GIST, News, Patient Support|

Here Comes the Sun: Skin Protection Tips for GIST Patients

As wonderful as the sun feels, especially after the harsh winter many of us experienced, its effects are cause for concern, especially for patients already challenged with skin issues. Keep reading to learn some skin protection tips for GIST patients.

By |2024-08-13T08:06:19-04:00August 7th, 2014|GIST Education, News, Patient Support|

Writing to Fight GIST – The Pen Is a Mighty Weapon Against Stress

Living with GIST can be stressful. There are many coping mechanisms to deal with chronic disease, but one that you may not have used in the past is one that others coping with stress have found enormously helpful: writing.

By |2019-09-20T15:02:08-04:00July 25th, 2014|Coping with GIST, News, Patient Support|

Alianza GIST meets in Zurich, Switzerland

Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.

By |2019-09-20T15:49:32-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News, Patient Support|

NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|

Cancer Treatment – The importance of patient enrollment in clinical trials

The future of cancer treatment relies on patient enrollment in clinical trials. In a recent Chicago Tribune article, a patient story is highlighted to illustrate the important role clinical trials play in cancer treatment, not only in [...]

By |2019-09-20T15:12:24-04:00June 25th, 2014|Advocacy, Clinical Trials, News, Patient Support|

New Horizons Zurich Meeting Declaration

The 2014 Zurich Declaration Principles for the transition to “Generic Drugs” for GIST (Gastrointestinal Stromal Tumors) Background and Purpose: GIST (Gastrointestinal Stromal Tumor) is a rare sarcoma, with an annual incidence of about 15 persons [...]

By |2019-09-24T12:54:57-04:00June 24th, 2014|Advocacy, Global, Patient Support|
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