Newsroom

LRG member Eileen Glasser creatively networks to support GIST Awareness Day

As July 13’s GIST Awareness Day draws closer we are encouraging all of our members to make the day their own by spreading the word in their local communities. Raising awareness about GIST eases obstacles to education, treatment and research that make this disease so difficult to battle. GIST Awareness Day puts the power to help bring about this change in the hands of you, our members, who have been most profoundly touched by GIST.

By |2019-09-20T11:27:24-04:00July 2nd, 2014|Events, Member Stories, News|
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Alianza GIST meets in Zurich, Switzerland

Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.

By |2019-09-20T15:49:32-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News, Patient Support|
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New Horizons Takes Place in Zurich, Switzerland

With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.

By |2019-09-20T15:49:04-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News|
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NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|
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Poker for Hope proves to be huge success

On Saturday, May 17th in the Caesars Palace poker room in Las Vegas, the Poker For Hope charity tournament took place, benefiting Tia’s Hope, The Life Raft Group, and Phase One Foundation. Poker for Hope was started by these three non-profit cancer support organizations with ONE goal in mind…A CURE!

By |2019-09-20T11:30:37-04:00July 2nd, 2014|Events, Fundraising, News|
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The Faces of We Are the Cure – Teena Petersohn

In December, 2013, the Life Raft Group launched its “We Are the Cure” campaign to fund GIST research in response to the shrinking pool of available funds. As a rare disease, GIST research is impacted more than other more common cancers like breast and colon. Institutions like the National Cancer Institute are funding just four to five percent of all research proposals which means that a rare cancer like GIST is lost amongst the roughly 200 cancers competing for funding.

By |2019-09-20T11:28:19-04:00June 26th, 2014|Fundraising, Member Stories, News, Research|
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Cancer Treatment – The importance of patient enrollment in clinical trials

The future of cancer treatment relies on patient enrollment in clinical trials. In a recent Chicago Tribune article, a patient story is highlighted to illustrate the important role clinical trials play in cancer treatment, not only in [...]

By |2019-09-20T15:12:24-04:00June 25th, 2014|Advocacy, Clinical Trials, News, Patient Support|
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Cancer Treatment – The Emotional and Economic Costs

There are multiple costs associated with cancer treatment. The emotional cost of cancer is obvious: fear and anxiety become constant companions. The economic cost is less apparent initially, as the patient and their support team [...]

By |2019-09-20T15:13:38-04:00June 25th, 2014|Drug Treatment, News|
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New Horizons Zurich Meeting Declaration

The 2014 Zurich Declaration Principles for the transition to “Generic Drugs” for GIST (Gastrointestinal Stromal Tumors) Background and Purpose: GIST (Gastrointestinal Stromal Tumor) is a rare sarcoma, with an annual incidence of about 15 persons [...]

By |2019-09-24T12:54:57-04:00June 24th, 2014|Advocacy, Global, Patient Support|
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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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