It's #TimeToGetTested. Understanding the role of mutations and biomarker testing is one of most important things patients must learn. It's time to bring together our physician community to raise their voices! In this post, we present out Biomarker Declaration for GIST pertaining to testing.
GISTer Tara Hammond's daughter, Kate, ran a bake sale and a Facebook fundraiser to raise money for The Life Raft Group called "Bake Sale for GIST Cancer!"
As part of our 'It's Time' campaign, we are sharing Blueprint Medicines's tools for talking to your doctor about biomarker/mutational testing.
This video contains information about the management of metastatic GIST presented by Dr. Aimee Crago.
On May 4th the LRG held a lively discussion with three long-term survivors, Erin McBean, John Abrams, and Dr. mOe Anderson. Diagnosed at different stages of life, with different mutations, these GISTers shared how they have thrived with GIST over ten years and counting.
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Knowledge makes an empowered patient and an empowered patient asks and researches their disease.
"¿Qué debo hacer si presento fátiga?" aportado por Fundación GIST México.
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
It's time to shorten the time to effective treatment access. Fundación GIST Chile shares their story.
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
