Patient of the Month for October: William Wenzel
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. William Wenzel shares his story.
Women in Sarcoma
The September webcast of Women in Sarcoma featured an interactive panel of women sarcoma experts sharing their expertise as powerful advocates working on behalf of those living with sarcoma.
Flu Season 2020
Fall is finally here, and with it comes the onset of flu season. The flu is a difficult illness for everyone, but for cancer patients, it can be devastating. It is especially challenging in this year that has already taxed everyone with the uncertainty of COVID-19.
Outreach & Engagement Update – September
This is the monthly update for the LRG Outreach & Engagement Department, detailing events for October and volunteer positions available.
Genetic Testing Cost Effective for Newly Diagnosed GIST
UC San Diego Health released a post today titled, "Genetic Testing Cost Effective for Newly Diagnosed GIST" discussing a new paper published in JAMA Network Open by Moores Cancer Center's Dr. Jason Sicklick and colleagues which covered genetic testing for GIST patients.
The Life Raft Group Announces Collaboration with OHSU on GIST Tissue Bank
In this issue of LRG Science, we release breaking news of our newest collaboration - with OHSU on the GIST Collaborative Tissue Bank. The LRG has a unique patient registry with over 2,000 members and this collaboration is an important example of the vital role patient advocacy groups and academic institutions play in bridging the gap between researchers and motivated patient populations who want to share their clinical histories and tissue to create new treatments and better outcomes.
Trent and Rosenberg of Sylvester Cancer Co-author Sarcoma Book with Other Experts in the Field
Dr. Jonathan Trent, GIST Specialist at Sylvester Cancer Center and Dr. Andrew Rosenberg, also a GIST Specialist at Sylvester, have co-authored a book dedicated to sarcoma diagnosis and management with other sarcoma experts specifically for the purpose of giving oncologists a credible authority to 'go-to' for sarcoma knowledge.
GIST Knows No Boundaries
On September 17, 2020, the Life Raft Group invited Dr. David Josephy, President of GIST Sarcoma Life Raft Group Canada, to present his highly acclaimed GIST 101: GIST Biology, Genetics and Pathology - an overview of the biology, genetics and pathology of GIST - for the members of Henzo Kenya, a patient advocacy group for GIST and CML patients in Kenya, Africa.
“LEY DE CÁNCER CLAUDIO MORA”
On Wednesday, August 26, 2020, LRG Global Consultant & Executive Director of Fundación GIST Chile, Piga Fernández, (GIST survivor & advocate), attended ae climatic event at Palacio de La Moneda (La Moneda), where the President Piñera of Chile took the final steps to sign the 'Ley de Cáncer Claudio Mora' guaranteeing healthcare protections for Chilean cancer patients.
Caregiver of the Month for September: Pat Rocco
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Pat Rocco shares her story.