Andrea Shedler – Major Donor
The LRG is very grateful for people like Andrea Shedler who use their creativity to raise awareness for GIST and contribute to #GISTresearch!
Fighting Anxiety & Depression on Your GIST Journey
A cancer diagnosis has a significant impact on patients, caregivers and their families. It is normal for someone diagnosed with GIST to feel a whole host of emotions ranging from anger to fear, sadness and anxiety about the future.
Resources for Your Cancer Journey
Being diagnosed with a rare cancer like GIST can make finding resources more challenging. While this is not an exhaustive list of resources available, these organizations can provide a wealth of information and assistance.
Top Ten Tips for Caregivers
Director of Communications Mary Garland shares these top ten tips for caregivers for this GIST journey.
Spokane GISTers Gather for Food & Sharing Along the Journey
Five GISTers and four caregivers attend the luncheon at Europa Restaurant and Bakery. Besides a great meal, attendees were able to meet each other and share our journeys through their GIST journeys.
Steve Pontell – Newest Board Member
The Life Raft Group announces Steve Pontell, Esq. as the newest addition to our Board of Directors.
Management of Adults with SDH-Deficient GISTs
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Building a Network of Rare Specialists
Margo Shoup is a doctor on a mission. She moved from the Chicago area to Connecticut almost a year ago and has been the catalyst behind the creation of specialized disease teams targeting cancer care in a health system that covers an extensive area from western Connecticut up into the Hudson Valley of New York State.
Making New Connections in NJ
Earlier this month, members of the LRG staff were invited to the Rutgers Cancer Institute of New Jersey by sarcoma specialist Dr. Roman Groisberg.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.