GIST Patients: Top Ten Tips To Avoid The Flu
Fall and winter mark the beginning of the flu season which is a concern for GIST patients. Though the weather is extraordinarily warm in this early winter, it does not mean the temperatures [...]
Liquid Biopsy Holds Promise for Precision Medicine
In a recent release from the Translational Genomics Research Institute (TGen), it was reported that researchers have discovered that by analyzing circulating tumor DNA (ctDNA) through liquid biopsy that a patient's cancer can be tracked [...]
Top GIST Specialists Present at California GDOL
On Sunday, November 15, the last GDOL in the 2015 series was held in Orange County, California at the Fullerton Arboretum. GDOL stands for GIST Day of Learning, a free, one-day program that [...]
Gerardo “Jerry” Marra, Renaissance Man, Man of Faith
Gerardo Jerry Marra, age 58 of Woodcliff Lake (Paramus) NJ passed away on Thursday, November 5, 2015. Born in Italy, he was the son of Donato & Anita Marra. The beloved husband of Anna Marie [...]
Genetic Alliance Event Invites Collaboration
Genetic Alliance recently held an event in Chapel Hill, N.C. that brought together patient advocates, scientists and representatives from the pharmaceutical industry in a unique “speed-dating” format. Disease advocacy organizations were invited to present briefly [...]
Society for Integrative Oncology Holds 12th Annual Conference in Boston
The Society for Integrative Oncology (SIO) was developed to advance evidence based, comprehensive, integrative healthcare to improve the lives of people affected by cancer. The 12th Annual SIO Conference was held in Boston in [...]
Connective Tissue Oncology Society (CTOS) Annual Meeting Update
Today’s researchers estimate that there are over 200 classified cancers today and that one out of three people will be affected by it at some stage in their life. With the extreme prevalence of cancer [...]
On the Road with the LRG Patient Registry
Michelle Durborow with Rodrigo Salas, LRG board member, at tenth annual ICORD meeting. The tenth annual ICORD meeting was held in Mexico City on October 13-14 with the theme “A Decade of Discoveries and [...]
Sebastian Bauer Awarded the 2015 GIST Group Switzerland Science Prize
LRG research team member, Dr. Sebastian Bauer recently received the 6th Annual Science Prize awarded by the GIST Group Switzerland on November 26, 2015 at the semi-annual meeting of the Swiss Group for Clinical [...]
Encouraging Rare Disease Connections at the NORD Conference
The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]