The latest issue of LRG Science is titled, "Patient-reported Treatment Responses in Known/Likely SDH-deficient GISTS: An Analysis of The Life Raft Group Observational Registry." This study highlights the very unique research role that defines The Life Raft Group. Subscribe to LRG Science by emailing mgarland@liferaftgroup.org with the subject line SUBSCRIBE LRG SCIENCE.
In 2018, The Life Raft Group continued its dedication to patients with GIST, working diligently to enhance survival and quality of life through research, information, education, advocacy, and outreach & engagement. These efforts would [...]
Blueprint Medicines Announces FDA Acceptance of New Drug Application for Avapritinib for the Treatment of PDGFRA Exon 18 Mutant GIST and Fourth-Line GIST Blueprint Medicines announced today that the FDA and the EMA have [...]
SPAEN (Sarcoma Patients EuroNet) Presents Webinar Webinar "Novel therapy options in GIST: What's on the horizon?" was presented by Dr. Jonathan Trent, Professor of Medicine, Associate Director, Clinical Research Director, Sarcoma Medical Research Program Sylvester [...]
David Epstein, LRG Pro Bono HR Consultant, Honored as a Leader The Life Raft Group is fortunate to have many volunteers who provide vital services to our organization pro bono. Not only are these [...]
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our members has a unique story to tell, but they all reflect the intrinsic [...]
This Personal Cancer Survival Plan is based upon practical observations gained from my experience [Norman Scherzer] of keeping my wife alive with a rare cancer called GIST (Gastrointestinal Stromal Tumor) for 22 years after she was given six months to live, and hundreds of patient medical histories and stories that come across The Life Raft Group forums and medical databases.
The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on June 22nd, 2019. GDOLs are free, one-day programs that provide both education and [...]
A GIST DO IT Walk was held prior to GDOL Portland 2019 at OHSU on 6/22/2019. GDOL participants walk to raise awareness and funds for GIST education.
The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on June 22nd, 2019. Top GIST specialists presented the latest on research and treatment options and provided a comprehensive review of the science behind GIST.
