Advocacy

LRG Hosts Virtual Meeting for Global GIST Advocates

On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.

By |2020-09-18T13:39:11-04:00September 8th, 2020|Advocacy, Events, Global, News|

NORD Hosts Rare Disease Summit

The National Organization for Rare Disorders (NORD) held a Rare Disease Summit in Washington, D.C. October 20019, hosting several thousand people comprised of patients, advocates, non-profit employees, health providers, IT developers, pharmaceutical staff, physicians and researchers, and representatives from government entities.

By |2019-12-18T11:06:15-05:00December 18th, 2019|Advocacy, Conferences, News, Newsletter|

One Voice Against Cancer (OVAC) Advocates for Cancer Patients

OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]

By |2019-07-02T14:28:52-04:00June 20th, 2019|Advocacy, News, Newsletter|

National Integrated Cancer Control Act Approved in the Philippines

WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In a country of 104 million, there are approximately 141,021 new cancer cases in [...]

By |2019-03-13T14:57:26-04:00March 13th, 2019|Advocacy, Global, News|

Chile Cancer March Brings Change – Advocacy in Action!

Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]

By |2018-12-17T14:35:47-05:00December 17th, 2018|Advocacy, Global, News, Newsletter|

The Life Raft Group – Part of the Conversation at CTTI

The Clinical Trials Transformation Initiative (CTTI) Steering Committee gathered in Washington, D.C. on September 25th to discuss how clinical trials fit within scientific strategies to address public health priorities, review the portfolio of initiatives, [...]

By |2018-10-29T13:25:55-04:00October 24th, 2018|Advocacy, Global, Newsletter|
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