SPAGN Conference 2026
The SPAGN Conference 2026 emphasized the power of patient involvement, collaboration, and whole-person care in improving sarcoma treatment and support.
Health Equity Council Update 10-3-25
The Life Raft Group Health Equity Council meets biweekly to discuss strategies for ensuring that all patients have equitable access to healthcare and resources. This is an update from the past two meetings.
Advocating for Yourself or a Loved One with GIST
Santy DiSabatino, Director of our US GIST Mentor Program, chatted with a group of GIST patients who have extensive experience advocating for themselves and their loved ones for the best possible care.
Advocating for Yourself or a Loved One with GIST
Santy DiSabatino, Director of our US GIST Mentor Program, will be chatting with a group of GIST patients who have extensive experience advocating for themselves & their loved ones for the best possible care.
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
A Conversation with Patient Advocate Sarah McGoram
Sarah McGoram is a long-term survivor & passionate patient advocate for GIST patients in Australia.
We stand with Ukraine. We stand with cancer patients.
International access to cancer treatment can be challenging. Access to effective treatment in a time of war provides a an even more daunting challenge.
Global Patient Involvement in Sarcoma Care
A recent paper published in Cancers by CTOS and SPAEN highlights major findings and proposes potential future steps in global sarcoma care.
New Horizons – Best Practices: How to Advocate for Better Access
Sarah McGoram, Carolina Goič, Florence Thwagi, Tania Carolina Diaz presented Best Practices: How to Advocate for Better Access at New Horizons 2021.
Patient Advocacy in Brazil – Instituto Oncoguia
Luciana Holtz de Camargo Barros, founder and president of Instituto Oncoguia, authored this article about the creation and advocacy issues of this cancer patient advocacy organization based in São Paulo, Brazil.