New SDH Tissue Testing Collaboration with NIH & UCSD
The LRG is partnering with the NIH and UCSD to create the first ever tumor biobank in the U.S. focused specifically on SDH-deficient GIST.
Surgical Considerations in GIST
In this webinar. Dr. Andrew Blakely, surgical oncologist, National Cancer Institute, Center for Cancer Research, NIH, discussed the basics of surgical removal of primary GISTs and considerations in multimetastatic disease.
Life Fest 2022: GISTs Surgery Basics
Dr. Andrew Blakely, National Cancer Institute, NIH, presented GISTs: Surgery Basics at Life Fest 2022 in New Orleans.
GIST Awareness Day Webinar: SDH Updates and Stories
GIST Awareness Day (GAD), July 13th), is a time where GIST experts, patients, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life [...]
It’s Time: The Life Raft Group Biomarker Testing Campaign – Identify Subsets & Clinical Trials
Identifying rare subsets of GIST and starting new clinical trials is critical. Read here about one researcher's clinical trial progress.
The LRG and NIH Collaborate on Virtual Tumor Boards to Review Challenging Cases
In this issue of LRG Science, we highlight the power of collaboration in medicine with a recap of the Virtual Tumor Board co-hosted with the NIH. Due to the pandemic, The Life Raft Group was asked to organize a Virtual Tumor Board to assure that challenging cases were presented in order to help the patients and their treating physicians develop an effective treatment plan.
LRG Featured in the MyPART Minute
The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
Management of Adults with SDH-Deficient GISTs
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
GIST Awareness Day NIH Clinic Photo Gallery
Participants at the 15th Pediatric and Wildtype GIST Clinic at the National Institute of Health (NIH) on July 5-7 participated in GAD activities based on our H.E.R.O. campaign. Our NIH Clinic participants [...]