Henzo Kenya is a patient support group made up of CML, GIST and recently added osteosarcoma patients. The need to support each other as patients inspired the great idea that is Henzo Kenya. Henzo [...]
Henzo Kenya, the CML and GIST support organization in Kenya, Africa held a conference at the Nairobi Hospital in the New Lecture Theatre Hall on Psychological Support and Wellness [...]
As the Life Raft Group continues to grow globally, we will highlight our international friends in each newsletter issue. In this interview with Ferdinand Mwangura, Chairman of Henzo Kenya, we discover how the seeds [...]
Henzo Kenya celebrated GIST Awareness Day all week, July 12th to 17th, by sharing information about GIST and giving messages of hope.
GIST Awareness Day in Kenya, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
On September 17, 2020, the Life Raft Group invited Dr. David Josephy, President of GIST Sarcoma Life Raft Group Canada, to present his highly acclaimed GIST 101: GIST Biology, Genetics and Pathology - an overview of the biology, genetics and pathology of GIST - for the members of Henzo Kenya, a patient advocacy group for GIST and CML patients in Kenya, Africa.
Sarah McGoram, Carolina Goič, Florence Thwagi, Tania Carolina Diaz presented Best Practices: How to Advocate for Better Access at New Horizons 2021.
About New Horizons New Horizons GIST is a conference that traditionally focuses on a large annual gathering with representatives from many countries to discuss critical information about GIST that impacts the global GIST [...]
Despite the challenges of Covid, the LRG has quickly developed new ways of working together virtually. We have kept afloat and served our community well during this dark year. These points of light show just how far we've come this year.