Patient Advocacy: You Can Make a Difference
At The Life Raft Group we are thankful to have a strong and motivated member community. Despite dealing with their own diagnoses, ongoing care and side effects, members often tell us, “I want to [...]
Logistic Toxicity: A Concern for Cancer Patients and Caregivers
A cancer diagnosis is overwhelming for both the patient and their caregivers. There is so much to absorb: the emotions, the drastic change in priorities and lifestyle, the treatments required, the financial burden. In [...]
ASCO Recommends Expanding Clinical Trials to Include More Older Adults
A recent call to action from ASCO (American Society of Clinical Oncology) published in the Journal of Clinical Oncology recommends expanding clinical trials to include more older adults. Given that greater than 60% of cancers in [...]
Sixth Annual Meeting of Alianza GIST in Miami
Representatives from ten Latin American countries gathered on May 17 in Miami, Florida, for the sixth annual meeting of Alianza GIST to discuss issues related to advocacy work in their region, last year’s accomplishments [...]
GIST Support Austria: A Community of Hope
International support for the GIST Patient Community continues to grow. In this article, Amy Bruno-Lindner reports on GIST Support Austria. Since the summer of 2013, GIST patients in Austria have had someone to turn [...]
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
Advocacy in Chile: An Update
Above Left to Right: Piga Fernandez, Health Minister Carmen Castillo Taucher, President Michelle Bachelet We reported previously on the advocacy work being in Chile to benefit patients who need high cost treatments for seriously ill [...]
On the Road with Milly: LRG Takes the Hill
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
On the road with Milly: Live from Washington – Training for the Hill
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]
On the road with Milly: LRG Advocates in Washington, DC
Live from Washington By Mildred Menos Hi Guys, Some of you may know me from hosting GDOLs (GIST Days of Learning in your city, that welcome phone call you received when you became a [...]