An advocate’s rewarding experience at the NIH Clinic
NIH Clinic Participants From the moment I landed at the Washington Reagan Airport to the time I took off to fly back home, the Pediatric and Wildtype GIST Clinic at the National Institutes [...]
Alianza GIST meeting to shape future
The Alianza GIST 2013 meeting in Miami marked an important milestone for GIST advocates as they embarked on a plan to build a self-sustainable organization in Latin America. “We were energized by the meeting and [...]
New Horizons makes a splash in Miami
New Horizons Participants in Miami, Fla. The 2013 New Horizons GIST conference was held at the Hilton Miami Downtown Hotel in Miami, Florida from Wednesday, June 5th to Friday, June 7th. The conference [...]
Scott Russell takes the scenic route to fundraising
In early June, Scott Russell, husband of GISTer Carol, participated in the Fourth Annual Allegheny 100 Backpacking Challenge held by the scenic Pennsylvania Allegheny National Forest Chapter of the North Country Trail.
July Is Sarcoma Awareness Month
Sarcoma Awareness Month is upon us. It was only about a year ago when Maura Cesarini, a longtime Life Raft Group member, won the Sarcoma Foundation’s 2012 Courage Award. Maura waged a 10-year battle with [...]
Michigan Local Group Meeting a Success
We had a good turnout at the Michigan LRG meeting on Saturday. Keep reading to learn more about the importance of local group meetings.
Your GISTory and Why it is Important!
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.
GIST patient shares her experience with Hospital
LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.
Rodrigo Salas encourages universities to discuss GIST and other rare diseases
Rodrigo Salas, the President of Fundación GIST México, participated in the XVL Ordinary Session of the Mexican Academy of Faculties of Medicine on April 19
Alianza GIST gets two new reps
As Latin American members meet this week, Alianza GIST has added two representatives, from Brazil and Puerto Rico. Valaria Hartt joins us from Brazil, while Eileen Rolon will represent Puerto Rico.