Increased tearing, or epiphoria, can be a side effect of your GIST treatment. There are a number of strategies to cope with increased tearing. Keep reading for more information. Here are a few strategies [...]
Hand and Foot Syndrome coping strategies. Although targeted cancer therapies are generally considered to have less side effects than traditional chemotherapy, the need to take these drugs for extended time periods (in many cases [...]
Updated 2/9/2022 Muscle cramps can occur during cancer treatment, and it is a common side effect patients in our Patient Registry experience. GIST Treatments including Gleevec, Sutent, Stivarga, Qinlock and Ayvakit can cause a [...]
I’ve been struggling to answer that question since I was diagnosed with a rare, malignancy known as gastrointestinal stromal tumor on February 18, 2011. I cannot remember what I am wearing right now without looking [...]
Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.
GIST patients deal with anxiety on a daily basis. A recent article in the New York Times has uncovered that anxiety actually lingers long after cancer.
I’ve been thinking a lot about writing this article. The last thing I want to do is cause worry or pain to anyone reading this. Then I thought of all the people who could possibly benefit in the future from knowing ahead of time what we didn’t know at the time we needed to know it.
1. Comfort is the goal of hospice – Many people think entering hospice is “giving up”, but that’s not true. Hospice is where you go to live comfortably with issues that are no longer in your control. The nurses and staff of hospice are there to assist you and your family in your own home, and are available 24 hours a day, seven days a week if needed.
Journal your way to better health. Keeping a journal is a great way to help you during your fight against GIST. Read more about the benefits and types of journaling.
Today is Rare Disease day, and since GIST is a rare disease we felt it important to remind everyone to take action. The Life Raft Group works hard to advocate for & support our members and their loved ones, but we need your help.
