Necrosis of the jaw has been reported to occur in some patients receiving bisphophonate therapy. There have been several reports of possible drug interaction between sunitinib (Sutent) and bisphophonates that significantly increases the risk of necrosis [...]
Between fifty to seventy percent of GIST patients participating in Gleevec clinical trials are reported to have edema according to the Life Raft Group survey (October, 2001) and www.gleevec.com. Edema can develop in different [...]
Mouth sores, or stomatitis as it is referred to in medical textbooks, can develop as a result of cancer treatment. There are many ways to help prevent and reduce the occurrence of mouth sores. How [...]
Increased tearing, or epiphoria, can be a side effect of your GIST treatment. There are a number of strategies to cope with increased tearing. Keep reading for more information. Here are a few strategies [...]
Hand and Foot Syndrome coping strategies. Although targeted cancer therapies are generally considered to have less side effects than traditional chemotherapy, the need to take these drugs for extended time periods (in many cases [...]
Updated 2/9/2022 Muscle cramps can occur during cancer treatment, and it is a common side effect patients in our Patient Registry experience. GIST Treatments including Gleevec, Sutent, Stivarga, Qinlock and Ayvakit can cause a [...]
I’ve been struggling to answer that question since I was diagnosed with a rare, malignancy known as gastrointestinal stromal tumor on February 18, 2011. I cannot remember what I am wearing right now without looking [...]
Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.
GIST patients deal with anxiety on a daily basis. A recent article in the New York Times has uncovered that anxiety actually lingers long after cancer.
I’ve been thinking a lot about writing this article. The last thing I want to do is cause worry or pain to anyone reading this. Then I thought of all the people who could possibly benefit in the future from knowing ahead of time what we didn’t know at the time we needed to know it.
