From Major Surgery to Metastases – Paul Mexcur’s Story
GISTer Paul Mexcur shares his story as a part of our Time to Tell the Stories 2022 campaign and shares an original poem as well.
A Unique Perspective by a Physician Who is a GISTer
Submitted by Dr. Indra Lovko, GISTer & LRG contributor Hello my fellow GI Stromal Tumor patients and caregivers! I was asked by the Life Raft Group staff to write about what it has been [...]
Preparing for Flu Season 2022
Autumn has arrived, and with it comes the onset of Flu Season. Flu is a difficult illness for everyone, but for cancer patients, it can be devastating.
Patient of the Month for October: Phil Honsey
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. It's Time to Tell the Stories! Phil Honsey shares his story.
Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues
I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18 in-person in Washington, DC via a full scholarship. During this highly anticipated [...]
Jess Ly Runs for the Cause – A Half Marathon for the LRG & GIST Awareness
During the pandemic and in September 2020, Jess Ly was diagnosed with GIST cancer. The Life Raft Group (LRG) community, her GIST friends, and the cancer community welcomed her with open arms. Now she's running a half marathon to raise awareness and funds for #GISTresearch!
GIST Specialist Dr. Neeta Somaiah Shares on Life as a Sarcoma Expert
LRG Medical Advisory Board Member and GIST Specialist Dr. Neeta Somaiah shares on her life as a sarcoma specialist.
Time To Tell The Stories – Donald Prestage
The Life Raft Group is celebrating our 20th anniversary as a nonprofit in 2022. Our Time to Tell the Stories features honor this legacy. GISTer Donald Prestage shares his story.
New Private Facebook Discussion Groups
The Life Raft Group is launching two new private Facebook Support Groups for patients and their caregivers. These two groups are designed to provide a safe forum to discuss specific concerns in a closed [...]
Global Advocacy News – SIMPOSIO ONCOLATINO
PIGA FERNÁNDEZ, LRG GLOBAL CONSULTANT, GLOBAL GIST DIR., EXEC. DIRECTOR FUNDACIÓN GIST CHILE I was invited to participate in this symposium organized by the Civil Society of Uruguay, together with almost 30 [...]