Patient of the Month for September: Martha ‘Marty’ Hunt
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Martha Hunt shares her story.
The Importance of Biomarker Testing for the Effective Treatment of GIST Patients – LRG Science
This issue of LRG Science presents six case studies as evidence that the practice of biomarker/mutational testing early in a GIST patient's journey is a critical path to the most effective treatment. Each patient was diagnosed with GIST, but did not receive mutational testing early enough to avoid suffering adverse side effects and wasting money on unnecessary, costly drugs.
New Studies Published on SDH Models and GIST Research
Two new studies were published in July and August 2021 focusing on SDH-deficient tumor models and how location can affect GIST tumor profiles and drug sensitivity.
NIH Pediatric & Wildtype Clinic’s ‘Virtual Tumor Board’ Hosted by the LRG
The LRG worked with the NIH to create a collaborative model to serve the needs of Pediatric & SDH patients, hosting a virtual tumor board on June 25th to replace the in-person Pediatric & Wildtype Clinic which the NIH holds annually.
What GISTers Need to Know About Clinical Trials
Dr. David Josephy and Jim Hughes discuss clinical trials for GISTers and what you need to know.
COVID-19 – Resources GIST Patients Need
COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.
Caregiver of the Month for August: Beth Kroll
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Beth Kroll shares her story.
Actualización realizada por dos prestigiosos especialistas internacionales en GIST
Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.
‘Educa GIST’ por Fundación GIST Chile
¿Necesita información sobre el GIST en español? Fundación GIST Chile ha creado un portal educativo sobre los cánceres gastrointestinales, incluido el GIST.
Feis Off! Water of Life Event Hosted by Dr. Matt Lurin
Festival Season is always a fun time in Scotland, and many folks make annual pilgrimages to some of their favorite distilleries including our own Water of Life Host, me, Matthew Lurin. However, in times of pandemics these festivals were cancelled and many fans were unable to take flights and drives and ferries to see their friends.