Cancer Drug Nivolumab Receives Regulatory Approval in Japan
A recent article from FierceBiotech announced that theAnti-PD-1 cancer drug nivolumab, a fully human antibody, received regulatory approval in Japan.
21st Century Cures Hearing In Washington D.C.
Marshall Summar, MD to testify on behalf of NORD at 21st Century Cures Hearing in Washington, D. C. on Friday, July 11 at 9 AM ET.
GIST Awareness Day Highlighted in New Press Release
Coverage of GIST Awareness Day continues with this press release that calls attention to our awareness campaign and our support for the global GIST community.
New tool assesses the financial pain of cancer treatment
As the cost of cancer treatment rises, so does the anxiety level of those diagnosed. The University of Chicago has developed a tool to assess the financial pain of cancer treatment. In the July issue of [...]
Living with ostomy: One LRG member’s story
Charlie Burke has developed a thick skin when it comes to cancer. After surviving bouts with colorectal, thyroid and skin cancers, he was well acquainted with the routine of doctor’s appointments, hospital visits, surgeries and regular treatment that accompany disease by the time a GIST tumor was discovered in his colon. However, as any of our members will tell you, GIST comes with its own unique lexicon to master and set of challenges to overcome.
LRG Research Team members contribute to new research with dystrophin study
In a recently published article in Nature Genetics, several prominent cancer researchers and GIST experts, led by Dr. Dr. Yuexiang Wang and including Dr. Jonathan Fletcher of Brigham & Women’s Hospital and Dr. Matthew van de Rijn of Stanford University Center, who are both members of the LRG’s research team, discuss new research findings that may potentially help identify GIST patients with a future high risk for metastases.
Expert patient training program a success
The LRG is proud to announce that the inaugural class of our GIST Expert Patient Training Program has been completed. The class, which was open to GIST patients, caregivers, and other members oaf the extended GIST community, was comprised of just under 20 students and was a comprehensive offering designed to help participants better understand the science behind GIST.
LRG member Eileen Glasser creatively networks to support GIST Awareness Day
As July 13’s GIST Awareness Day draws closer we are encouraging all of our members to make the day their own by spreading the word in their local communities. Raising awareness about GIST eases obstacles to education, treatment and research that make this disease so difficult to battle. GIST Awareness Day puts the power to help bring about this change in the hands of you, our members, who have been most profoundly touched by GIST.
Alianza GIST meets in Zurich, Switzerland
Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.
New Horizons Takes Place in Zurich, Switzerland
With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.