News

Furthering research through the NIH Pediatric GIST clinic

From June 15 through June 17, 2011, the National Institutes of Health (NIH) hosted the seventh annual Pediatric and wildtype GIST Clinic. Ten patients from across the United States and Canada attended, accompanied by family members or friends. In total, 80 patients have participated in the NIH Pediatric GIST Clinic, 75 of whom have wildtype GIST. Thirty-five percent of patients have pediatric GIST, currently defined as diagnosis before the age of 19.

By |2019-10-11T11:09:43-04:00August 1st, 2011|News, Pediatric GIST|
Read More

ASCO 2011 Overview

This year’s American Society of Clinical Oncology conference (ASCO), held in Chicago in June, produced a number of interesting and informative GIST-relevant presentations. Below is an overview and we will be posting the rest of the articles very soon.

By |2019-10-11T11:11:34-04:00August 1st, 2011|News|
Read More

First GIST tumor board convenes for Latin American docs

Alianza GIST, in partnership with the Life Raft Group, The Max Foundation, and Tecnológico de Monterrey hosted an event for Latin American physicians on Sunday June 5th at the American Society of Clinical Oncology conference (ASCO). The meeting drew physicians from many countries as they discussed best practices in Latin America for GIST and convened a Tumor Board with case discussions.

By |2019-10-15T09:49:03-04:00August 1st, 2011|News|
Read More

Swiss are back at it with 8th annual meeting

Approximately 90 GIST patients, relatives, GIST experts, interested professionals, physicians and representatives of the pharmaceutical industry gathered in Zurich on April 8, 2011 for the eighth meeting of the Swiss GIST group in the Restaurant Au Premier at Zurich Main Station (HB Zürich).

By |2019-12-26T12:42:13-05:00June 1st, 2011|News|
Read More

State of the GIST Community Part 3: What do we know about mutational testing?

As of May 1, 2011, the LRG patient registry only received 377 reports of mutations out of 1,327 patients, which only represents 28 percent of the entire registry. Part of this may be related to the fact that mutational testing is not common practice at diagnosis.

By |2019-04-05T09:20:33-04:00June 1st, 2011|Mutational Testing, News|
Read More

FDA too rigid in review of drugs for critically ill

Scott Gottlieb has fired a shot across the FDA's statisticalconfidence bow. The former FDA Deputy Commissioner, using the Wall Street Journal as his command post, charges the regulator with "steadily disregarding" the provisions of the FDA Modernization Act that give it "broad discretion" to reduce the quantity and rigor of clinical data needed to approve drugs targeting grave illnesses.

By |2019-09-23T14:23:26-04:00April 1st, 2011|News|
Read More

The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

Silver GuideStar - Seal of Transparency

The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

Toggle Sliding Bar Area
Go to Top