My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]
Sharing health conditions with your employer can be a difficult yet important decision you may have to make. Maybe you’ve been diagnosed with a serious health condition recently or you may always have had [...]
Although breakthroughs in cancer treatment have contributed to longer survival rates, the reality is that sometimes treatments stop working, and a cure or remission is no longer possible. Referred to as advanced, terminal. or [...]
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]
At its heart, the Life Raft Group is a love story. In this video, Norman Scherzer shares two love stories, and asks us all to continue to keep the spirit of love alive [...]
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, SideEQ, to the LeioMyoSarcoma Patient-Family-Care Partner Community. Commencing on May 5, members of [...]
