Second Water of Life Event to Make a “Big Splash”
Join The Life Raft Group on May 12, 2016, for our second annual whisky fundraiser, Water of Life! This year, the event will be held at Midtown Loft and Terrace in New York City. [...]
Becoming a “Patient Champion”: Strategies for Caregivers
Navigating the waters of medical treatment can be not only confusing, but also potentially deadly. According to the Agency for Healthcare Research and Quality, one in seven Medicare patients in hospitals experiences a medical error. [...]
Side Effects Management Vital to the Quality of Life
In a recent article in Cure Today, LRG Marketing Director, Erin Kristoff, details the importance of side effects management and the role the LRG plays in helping to extend survival and to improve the [...]
Rebecca Theresa Harper – Inspiration to Others, Woman of Faith
Rebecca Theresa Harper was born January 24, 1951 in Atchison, KS to Victor Edmond and Pauline Mary (Maday) Kesse and after a long and faith-filled fight with cancer, died March 14, 2016 in Kansas [...]
Congratulations – Teena Petersohn
Please join us in welcoming as the newest member of the Life Raft Group Board of Directors. As an LRG member, Teena has been an advocate for GIST patients since joining the LRG in [...]
Webcast Provides Perspective on Generic Imatinib
On February 1, 2016, the commercial launch of the generic version of imatinib mesylate (Gleevec), originally for CML (Chronic Myeloid Leukemia), was approved by the FDA and became available for the first time in the United States through Sun Pharmaceuticals. In response to this transition, the LRG provided an educational Webinar to the CML and GIST communities on March 18th entitled “Generic Imatinib: Gaining Perspective.”
Local Advocacy: LRG supports NJ Bill A-2337
Although GIST is among the few rare diseases that has available drug therapy treatment options, the cost of these lifesaving medications can sometimes impose deep financial hardship, depending on the terms of the patient’s [...]
Nutrition – Absorbing Nutrients After Surgery
The digestive system is a group of organs that work together to feed the entire body by converting food into energy and basic nutrients. Food is ingested through the mouth; passed through the esophagus into the stomach; and filtered through the small intestine, pancreas and liver. Based on its particular function, each organ contributes in different ways to turn the food we eat into the nutrients we need.
Cancerversary – Susan Brandt
Susan Brandt 6 YEARS “As my 6th Gist cancerversary approaches, I realize that the two most important things in my life now are Hope and Thanks. Hope is for a cure for all of [...]
Brief from ASCO’s Clinical Cancer Advances 2016
On February 4, 2016, Life Raft Group member Noha Hussein attended the American Society of Clinical Oncology’s (ASCO) Capitol Hill Briefing on their report, “Clinical Cancer Advances 2016,” in Washington, DC at the Rayburn [...]