Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
21
07, 2021
29
06, 2021
Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
11
06, 2021
GIST Awareness Day 2021
Despite all the work done by our amazing members and friends to date there is still a huge lack of education and awareness that exists within the medical community and general public about GIST. [...]
27
03, 2019
LRG Science
The LRG Science Bulletin We will be sharing valuable real world data and real world evidence through our newest publication, the LRG Science Bulletin. LRG Science will include data from our Patient [...]
18
06, 2018
Newsletter Archive
Subscribe to the LRG Newsletter 2023View December NewsletterView August Newsletter- GAD Highlights, Life Fest 2024 news & more!View April Newsletter 2022 View December 2022 Newsletter PDF Focus on GDOLs CTOS Sheds [...]
16
06, 2015
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
26
12, 2012
Annual Report Database
Our Annual Report Database features reports from 2005 to the present. Each annual report can be downloaded via the links above each image. If you have any questions or comments please contact us. Be sure [...]
11
02, 2010
Member Story – Patrick Maguire
After months of waiting rooms, medical tests, consultations, a couple of bad doctors and a few hospital stays, I was diagnosed with a golf ball-sized tumor in my small intestine.
18
03, 2024
Facebook Fundraiser
Return to Ways to Give Landing Page Fundraise on Facebook With just a few clicks, you can create a Facebook Fundraiser to raise money for GIST and other rare diseases. Your generosity has the [...]
9
02, 2024
Patient of the Month – February 2024: Helbert Salas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Simon Yeung shares his story. #thrivingtogether
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