GIST Day of Learning – GDOL Tampa
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. This was the first GDOL presented in Tampa. GDOLs are free, one-day programs [...]
One Voice Against Cancer (OVAC) Advocates for Cancer Patients
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]
The LRG GIST Peer Support Program
[Please note that GIST Peer Support program has been renamed the GIST Mentor Program 11.5.19]. Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system to help patients and their caregivers through a very difficult time in their lives. Why? They may just be finding out they or a loved one has GIST, or they are experiencing a recurrence and they want to be able to talk with someone.
ISPOR 2019
The Future of RWE & Improving the Quality of Patient Survival Two members of The LRG staff recently attended the annual ISPOR meeting in New Orleans. ISPOR (International Society for Pharmaceutical Economics and Outcomes [...]
Hope Prevails
At 39-years-old, Fatema Suterwala was preparing to say goodbye to her husband and young son. Confused by this cruel twist of fate and wracked with pain, she was saved by a collaboration of medical [...]
In Memoriam – Nikki Morales
Dear Nikki, You have left us too soon, but your presence will be felt far and wide for a very long time. From the moment I first spoke with you on the phone, I [...]
Ron Agypt – In Memoriam
Ronald George Agypt, 62, born in Johnstown, PA on June 3, 1956 to George Abraham Agypt and Mary Jane (Abraham) Agypt (both deceased), passed away on April 10th, 2019, at his home in Alpharetta, [...]
In Memoriam – Erlinda Adajar
Erlinda (Linda) Adajar, loving and dedicated wife, mother, grandmother, sister and friend, passed away on December 24, 2018 at Memorial Sloan Kettering Hospital in NYC. She was 77 years old. Linda was born on [...]
Global Representative Spotlight – Florence Thwagi, Kenya
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
State Leader Spotlight – Wendi Lax
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]