What does cancer feel like?
I’ve been struggling to answer that question since I was diagnosed with a rare, malignancy known as gastrointestinal stromal tumor on February 18, 2011. I cannot remember what I am wearing right now without looking [...]
LRG researchers publish ‘cell sleep’ study
Members of the Life Raft Group Research Team continue to publish results of promising studies aimed at finding a cure for GIST. The latest reflects the collaboration that guides its efforts.
Sosipatros Boikos takes helm at NIH Clinic
Dr. Sosipatros Boikos, a graduate of University of Crete in Greece, very early and while he was a first year medical student, developed an interest in cancer genetics. After graduating from medical school, he came to the National Institutes of Health as a Visiting Research Fellow to work on the genetics of Wildtype gastrointestinal stromal tumors—those GIST tumors without a KIT or PDGFRA mutation—under the supervision of Dr. Constantine Stratakis, the researcher who identified Carney-Stratakis Syndrome.
Scott Russell takes the scenic route to fundraising
In early June, Scott Russell, husband of GISTer Carol, participated in the Fourth Annual Allegheny 100 Backpacking Challenge held by the scenic Pennsylvania Allegheny National Forest Chapter of the North Country Trail.
Chris Skiff Defies Odds by Running in California Marathon
When Chris Skiff was in elementary school, he “felt the urge to run.” And he has been running ever since. Even after being diagnosed with GIST.
Swiss Meeting Marks Group’s 10th Anniversary
This year’s Swiss GIST meeting on April 19 in Zurich was a special event. The board had started to plan early, as it wanted to offer a special program to commemorate the tenth anniversary. The [...]
Clinical Trials – Reforms Discussed to Meet Patient Needs
The conversations about improving clinical trials to better meet the needs of cancer patients continue, with two noteworthy arguments set forth recently. Both arguments address the need to rethink the design of clinical trials.
July Is Sarcoma Awareness Month
Sarcoma Awareness Month is upon us. It was only about a year ago when Maura Cesarini, a longtime Life Raft Group member, won the Sarcoma Foundation’s 2012 Courage Award. Maura waged a 10-year battle with [...]
Juicing can help ensure good nutrition
Juicing can help ensure good nutrition. Making your own juices with a wide variety of fruits and vegetables is one way of getting the vitamins and nutrients your body needs.
LRG researchers publish study on DREAM complex – an important regulator of GIST “cell sleep”
A study about the DREAM complex was published in the June issue of Cancer Research by LRG Research Team members Drs. Anette Duensing and Maria Debiec-Rychter.