Fundación GIST Chile GIST Awareness Day Video
On the GIST Awareness Day, Fundación GIST Chile wants to be the voice of all people who require that Health Systems cover the treatments that we need.
Thoughts on the Cancer Moonshot Summit
On July 29, 2016 I traveled to Howard University in Washington, DC to be a participant in Vice President Joe Biden’s Cancer Moonshot Summit. This invitation-only event was designed to bring together individuals and [...]
LRG Advocates Making a Difference: OVAC Lobby Day
WOW!!! What a great experience, to make your presence known in Washington DC! Each year, One Voice Against Cancer (OVAC) organizes a lobby day to urge Congress to support funding for cancer research, prevention [...]
LRG to Participate in Moonshot Project
On June 29th, LRG Executive Director, Norman Scherzer, will be attending Vice President Joe Biden’s “National Moonshot Summit,” at Howard University. A “by invitation only” event, the summit is designed to bring together scientists, [...]
Advocacy: Patients Shall Be Held Harmless
There has been discussion in the news recently concerning charitable giving patient assistance programs that aid Medicare and Medicaid patients with premium assistance. New federal regulatory guidance seeks to prohibit charitable organizations from helping [...]
Patients Shall Be Held Harmless
On March 19, 2014, the Centers for Medicare & Medicaid Services (CMS) issued federal guidance on third-party insurance payments for the new Exchange plans offered under the Affordable Care Act (ACA). In direct contradiction [...]
Team J’s Ride Across America (RAA) 2016
Members of Team-J's Charity Bicycling Team are planning to bicycle in Ride Across America in support of two causes; Hydrocephalus Awareness - www.hydroassoc.org GIST Pediatric Cancer Awareness - www.liferaftgroup.org Donate Now TEAM-J's local [...]
Local Advocacy: LRG supports NJ Bill A-2337
Although GIST is among the few rare diseases that has available drug therapy treatment options, the cost of these lifesaving medications can sometimes impose deep financial hardship, depending on the terms of the patient’s [...]
Brief from ASCO’s Clinical Cancer Advances 2016
On February 4, 2016, Life Raft Group member Noha Hussein attended the American Society of Clinical Oncology’s (ASCO) Capitol Hill Briefing on their report, “Clinical Cancer Advances 2016,” in Washington, DC at the Rayburn [...]
LRG Supports New Jersey Legislation to Limit Patient Cost Sharing
Although GIST is among the few rare diseases that has oral chemotherapy drug treatment options available to its patients, the cost of affording these life saving medications can sometimes impose deep financial hardship depending [...]