The Alianza GIST 2013 meeting in Miami marked an important milestone for GIST advocates as they embarked on a plan to build a self-sustainable organization in Latin America. “We were energized by the meeting and [...]
New Horizons Participants in Miami, Fla. The 2013 New Horizons GIST conference was held at the Hilton Miami Downtown Hotel in Miami, Florida from Wednesday, June 5th to Friday, June 7th. The conference [...]
In early June, Scott Russell, husband of GISTer Carol, participated in the Fourth Annual Allegheny 100 Backpacking Challenge held by the scenic Pennsylvania Allegheny National Forest Chapter of the North Country Trail.
Sarcoma Awareness Month is upon us. It was only about a year ago when Maura Cesarini, a longtime Life Raft Group member, won the Sarcoma Foundation’s 2012 Courage Award. Maura waged a 10-year battle with [...]
We had a good turnout at the Michigan LRG meeting on Saturday. Keep reading to learn more about the importance of local group meetings.
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.
LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.
Rodrigo Salas, the President of Fundación GIST México, participated in the XVL Ordinary Session of the Mexican Academy of Faculties of Medicine on April 19
As Latin American members meet this week, Alianza GIST has added two representatives, from Brazil and Puerto Rico. Valaria Hartt joins us from Brazil, while Eileen Rolon will represent Puerto Rico.
The issue of personalized medicine, also referred to as "precision medicine" in the article, was addressed in a newsletter article by LRG Executive Director Norman Scherzer in February. We hope to follow up with more articles on the topic soon.
