GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
A Lively Liver: Monitoring Liver Health with GIST
The liver, located under the right rib cage, is the body’s largest internal organ and acts as a factory, regulating digestion, blood content, nutrient production and storage. The liver processes all that funnels through [...]
Michigan GIST Day of Learning
Dr. Baker presenting at Michigan GDOL The Life Raft Group held its first GIST Day of Learning (GDOL) in Michigan on October 27th in Ann Arbor. GDOLs are free, one-day programs that [...]
Flu Season 2018-2019 Updates
Fall is finally here, and with it comes the onset of Flu Season. Flu is a difficult illness for everyone, but for cancer patients, it can be devastating. On average, 5 percent to 20 [...]
Life Fest 2018 State of GIST: A Clinical Panel of Experts
State of GIST: A Clinical Panel of Experts Presented by Jason Sicklick, MD, Moores Cancer Center, University of California, San Diego; and the GIST Experts Panel - Markku Martti Miettinen, MD, National [...]
SoCal Support Group Meeting for GISTers
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
Mutational Testing and Genetics
So, I’ve been told that I have GIST! Life changes suddenly and profoundly when you receive a cancer diagnosis. It’s normal to experience a state of shock, but there is a practical need to [...]
New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]
Scottsdale Arizona hosts the first GDOL of 2018
The Life Raft Group held its first GIST Day of Learning 2018 in sunny Scottsdale, Arizona on March 10th. GDOLs are free, one-day programs that provide both education and support to the GIST community. [...]
LRG Webcast Series: Nutrition and Healthy Living with GIST
While Dr. Guhagarkar is a GIST patient, this webcast would benefit anyone who struggles with these issues, regardless of the disease they have. We believe that patients and caregivers sharing their experiences plays an important part in helping fellow patients live better with their disease and side effects.