Patient of the Month for May: Pamela Trovato Nau
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Pamela Trovato Nau shares her story.
It’s Time: The Life Raft Group Biomarker Testing Campaign – The Physician Community Speaks
It's #TimeToGetTested. Understanding the role of mutations and biomarker testing is one of most important things patients must learn. It's time to bring together our physician community to raise their voices! In this post, we present out Biomarker Declaration for GIST pertaining to testing.
Kate Hammond Raises Funds for Mom’s “Life Raft”
GISTer Tara Hammond's daughter, Kate, ran a bake sale and a Facebook fundraiser to raise money for The Life Raft Group called "Bake Sale for GIST Cancer!"
It’s Time: The Life Raft Group Biomarker Testing Campaign – Empower Patients
As part of our 'It's Time' campaign, we are sharing Blueprint Medicines's tools for talking to your doctor about biomarker/mutational testing.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Outcomes
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Knowledge makes an empowered patient and an empowered patient asks and researches their disease.
¿Qué debo hacer si presento fátiga?
"¿Qué debo hacer si presento fátiga?" aportado por Fundación GIST México.
Annual Report 2020
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
It’s Time: The Life Raft Group Biomarker Testing Campaign – Effective Treatment Access
It's time to shorten the time to effective treatment access. Fundación GIST Chile shares their story.
NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Precise Diagnosis
It's time to to recognize the value of a more precise diagnosis. GISTer Jon Treder shares his story.