GIST Awareness Day – Chile
GIST Awareness Day in Chile, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Do It: All Year Long
GIST DO IT is an amazing way to educate the medical community and the general public about GIST. We would like to take it to the next level and encourage everyone to “GIST DO IT All Year Long.”
New Horizons – International Focus on the Power of Real World Data to Enhance Advocacy Efforts
International advocates meet in Wayne, NJ, at the annual New Horizons GIST Conference to discuss scientific updates, regional issues, and unmet needs for the global GIST community in May 2019.
The First GIST DO IT Walk NJ – Held in Loving Memory of Ted Wolf
On May 4, 2019, The Life Raft Group held its first GIST DO IT Walk in New Jersey, at Verona Park. Despite the drizzle, over 50 people were in attendance and over $18K was raised for #GISTresearch.
International Collaborations – Salud con Datos 2019
International collaborations accelerate patient advocacy and affect policy changes and treatment protocols On May 7th, representatives from Colombia, Chile, Mexico, and The Life Raft Group assembled for the annual Salud con Datos [...]
Fifth Annual Water of Life Fundraiser 2019
Dr. Matthew Lurin’s Fifth Annual Water of Life Whisky fundraiser was held on May 16th at the Manhattan Center Ballroom in New York City. There were over 150 people in attendance which [...]
Update on a New Clinical Trial Offered to Eligible GIST Patients
The INTRIGUE study is a Phase 3 clinical trial testing the investigational drug ripretinib (DCC-2618) for patients living with GIST that are no longer on imatinib due to progression or intolerance.
On the Speaking Circuit with The LRG
Norman Scherzer was invited to speak at three prestigious events this spring; participating in a roundtable discussion, presenting a cancer survival plan, and speaking to a patient advocacy group. As a direct [...]
GIST Day of Learning – GDOL Tampa
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. This was the first GDOL presented in Tampa. GDOLs are free, one-day programs [...]
One Voice Against Cancer (OVAC) Advocates for Cancer Patients
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]