You Are the Hope
Hope is an important resource during difficulty times. Mary Garland, Director of Communications for the LRG, shares her observations on hope.
Science Forum Convened to Better Understand the State of GIST Research
As research regarding GIST and other relevant topics is extensive and dynamic, consensus among the Real World Evidence Team was that it would be a good idea to convene a group tasked with monitoring and assessing this research. Recently the LRG held its inaugural virtual meeting of the newly formed LRG Science Forum.
When Your Mind Wanders
We often hear our patients and caregivers say they are struggling with anxiety due to a GIST diagnosis. This anxiety can put a damper on everyday life. Here are ten tips to stay in the moment when your thoughts wander.
Marlene Nei – Volunteer, Advocate, and Caregiver
Marlene has been a member of the Life Raft Group since 2011. Marlene has a long history of volunteerism for which she credits her mother who modeled helping anyone and everyone.
Hope & Obstacles Along a GIST Journey
Many GIST patients around the world struggle with getting the treatment they need to survive and thrive. Arun Krishnan’s story illustrates how collaboration between patient groups and doctors across the globe can affect patient survival.
The State of GIST Treatments
Senior Scientific Director Pete Knox reports on current and emerging GIST treatments and the mutations they address. New research in GIST is happening, and there may be even more therapies around the corner.
Passion Translates to Advocacy Across the Globe
When facing a diagnosis of cancer, self-advocacy becomes an important survival skill for patients and caregivers. These stories illustrate what an ordinary person can accomplish due to extraordinary circumstances and how they affected change for so many people with GIST.
One Perspective on the BLU-285 Trial (avapritinib/Ayvakit)
LRG members Jennifer & Owen Moore give their perspective on participating in the Phase I BLU-285 trial at OSHU with Dr. Michael Heinrich. After three other drug treatment lines and faced with several growing tumors, the BLU-285 (avapritinib) trial was Owen’s best option.
Whisky Lovers Gather at WOLF
Whisky aficionados gathered for the 3rd Annual Water of Life Fall event (WOLF) to enjoy whisky and raise funds for #GISTresearch.
Andrea Shedler – Major Donor
The LRG is very grateful for people like Andrea Shedler who use their creativity to raise awareness for GIST and contribute to #GISTresearch!