Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]
On September 21st, 2018, Vice President Joe Biden and Dr. Jill Biden convened a national Biden Cancer Summit, with the anchor event in Washington D.C., and more than 450 Community Summits held where people [...]
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]
The Clinical Trials Transformation Initiative (CTTI) Steering Committee gathered in Washington, D.C. on September 25th to discuss how clinical trials fit within scientific strategies to address public health priorities, review the portfolio of initiatives, [...]
Ron & Kim Agypt The Life Raft Group welcomed Ron Agypt to the Board this month. Ron is a retired insurance executive, father of three, and grandfather of five. Ron and his [...]
If you haven't visited our website lately, it's likely you haven't seen some of our new features. We'll be featuring a unique feature in each newsletter. This issue the spotlight is on the Patient [...]
On September 6th, Executive Director, Norman Scherzer and I attended the New Horizons GIST meeting in Vienna, Austria. Forty-three delegates, including GIST experts, advocacy groups, and patients/caregivers from 18 countries, gathered to share valuable [...]
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]
