Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]
The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]
New Drug Approved for Patients with Rare Gene Fusion By Sara Rothschild, MPH, Vice President, Program Services & Jerry Call, Data Analyst The Food and Drug Administration granted accelerated approval on November 26th to [...]
Left to right: Laura Occhiuzzi, Pete Knox, Alyssa O’Driscoll, Sarcoma Alliance, Annie Achee, National LeioMyoSarcoma Foundation, Denise Reinke, SARC, and Mitch Achee, National LeioMyoSarcoma Foundation. GIST Research from CTOS 2018 A web-based [...]
With the start of a new year, there is an opportunity to make positive changes. Cancer patients face dramatic change in their lives, and chances are they have already experienced a time of reflection [...]
Everywhere you turn, the sights and sounds of the holiday season assail you. Before the Halloween candy is sorted and the Thanksgiving turkey is cold, we are reminded of what some call “the most [...]
The 15th annual “Night to Fight Cancer” (NTFC) benefiting the Life Raft Group’s research programs took place November 7th, 2018 at Midtown Loft and Terrace. Jerry Cudzil, LRG Board President, was joined again by [...]
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
A cancer diagnosis at any age is life-changing, daunting, and difficult. It can be especially challenging for young adults, people ages 18-39, who are dealing with cancer while also navigating college, first careers, new relationships, starting families, and other young adult milestones. Every year, 70,000 young adults are diagnosed with cancer, and that doesn’t include those diagnosed as children who are now young adult survivors and thrivers. As a young adult with cancer, I know it can be hard finding other people who “get it.”
How to Make 2/3 = 1 (100%) In a recent discussion about the frequency of mutations in GIST, we noted that the most common mutation is KIT exon 11, which makes up about 2/3 [...]
