IRBs and the LRG Patient Registry
Institutional Review Boards (IRBs) are the core of the well-established U.S. system for the protection of human research participants.
Your GISTory and Why it is Important!
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.
Distribution by State of U.S. GIST Patients in LRG Patient Registry
We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.
Join Our Tissue Bank – Help the LRG Find A Cure
Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.
LRG launches new & improved website, convenient mobile app & online store!
After two years of planning, toiling, and more planning, the LRG unveiled its redesigned website on January 1 at our same web address: liferaftgroup.org. Finding the balance between providing life-saving information and explaining GIST in a concise, understandable way, has always been a struggle for the Life Raft Group.
LRG Research Team holds quarterly meeting
The LRG Research Team recently held a teleconference that focused primarily on a study the team will collaborate on and intends to publish.
State of the GIST community: Life Raft Group’s patient registry demographics
As of December 31, 2010 the Life Raft Group’s Patient Registry has now accounted for 1,279 cases of GIST. The members of this registry have reported their clinical information to us as it pertains to their treatment of GIST. Of these 1,279 cases, we are here to report some key demographics that will help you understand who is a part of Life Raft Group GIST Community.
Analysis of an observational registry of gastrointestinal stromal tumor (GIST) patients
This poster reported the latest data from the GIST ReGISTry, an online database of GIST patient statistics maintained by a group of American and Canadian GIST specialists and supported by Novartis Pharmaceuticals.