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It’s Time to Tell The Stories: Our Good News – Giving Tuesday All Year Long

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Giving Tuesday All Year Long!

By |2022-11-30T11:49:10-05:00November 28th, 2022|Fundraising, News, Patient Support|

It’s Time to Tell The Stories: Our Good News – Diana

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Diana Nieves shares about Support Services.

By |2022-11-29T10:12:31-05:00November 21st, 2022|Fundraising, News, Patient Support|

Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues

I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18  in-person in Washington, DC via a full scholarship. During this highly anticipated [...]

By |2022-10-21T10:09:41-04:00October 21st, 2022|Advocacy, Conferences, News|
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