Newsroom

Feis Off! Water of Life Event Hosted by Dr. Matt Lurin

Festival Season is always a fun time in Scotland, and many folks make annual pilgrimages to some of their favorite distilleries including our own Water of Life Host, me, Matthew Lurin. However, in times of pandemics these festivals were cancelled and many fans were unable to take flights and drives and ferries to see their friends.

By |2021-07-29T21:57:12-04:00July 29th, 2021|Fundraising, News|

Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community

The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.

By |2021-07-29T11:58:30-04:00July 29th, 2021|News, Research, SDH-Deficient GIST|

‘It’s Time’ to Continue Our Message About Biomarker Testing!

So far in 2021, our 'It's Time' campaign has emphasized twelve important points concerning biomarker testing and the important role it plays in a GIST patient's journey. We will keep the momentum going with patient stories, webinars, and resource materials.

By |2021-09-27T14:30:56-04:00July 22nd, 2021|Mutational Testing, News|

Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day

On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease Day Advocacy Training Session which was presented live on Facebook by Good Days [...]

By |2021-07-21T10:02:18-04:00July 21st, 2021|News|

It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time to Save Lives!

Biomarker testing is an opportunity to improve and optimize treatment. In this post, GISTer Bill Borwegen shares his story and we share how you can help save lives.

By |2021-09-27T14:32:40-04:00July 1st, 2021|Mutational Testing, News|

The Eyes Don’t See What the Mind Doesn’t Know – GIST Education in México

Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.

By |2021-06-30T11:53:11-04:00June 30th, 2021|Advocacy, Global, News, Newsletter|
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