GIST: Actualizacion en el tratamiento
"GIST: Actualizacion en el tratamiento", presentación del Matias Chacon, May 12, 2016.
GIST Keep Swimming: Words to Live By
Life with cancer is like tossing all your dreams, goals and achievements into a bag, shaking it up and dumping it onto the floor to be stomped upon. Some say I was lucky to get my diagnosis at age 16, before I had a career or a family to support.
Leading GIST Experts Weigh in at ESMO
David Josephy On behalf of The Life Raft Group USA and Life Raft Group Canada, I attended the Sarcoma & GIST 2016 meeting organized by the European Society for Medical Oncology (ESMO) [...]
Second Water of Life Event to Make a “Big Splash”
Join The Life Raft Group on May 12, 2016, for our second annual whisky fundraiser, Water of Life! This year, the event will be held at Midtown Loft and Terrace in New York City. [...]
Becoming a “Patient Champion”: Strategies for Caregivers
Navigating the waters of medical treatment can be not only confusing, but also potentially deadly. According to the Agency for Healthcare Research and Quality, one in seven Medicare patients in hospitals experiences a medical error. [...]
Side Effects Management Vital to the Quality of Life
In a recent article in Cure Today, LRG Marketing Director, Erin Kristoff, details the importance of side effects management and the role the LRG plays in helping to extend survival and to improve the [...]
Rebecca Theresa Harper – Inspiration to Others, Woman of Faith
Rebecca Theresa Harper was born January 24, 1951 in Atchison, KS to Victor Edmond and Pauline Mary (Maday) Kesse and after a long and faith-filled fight with cancer, died March 14, 2016 in Kansas [...]
Congratulations – Teena Petersohn
Please join us in welcoming as the newest member of the Life Raft Group Board of Directors. As an LRG member, Teena has been an advocate for GIST patients since joining the LRG in [...]
Webcast Provides Perspective on Generic Imatinib
On February 1, 2016, the commercial launch of the generic version of imatinib mesylate (Gleevec), originally for CML (Chronic Myeloid Leukemia), was approved by the FDA and became available for the first time in the United States through Sun Pharmaceuticals. In response to this transition, the LRG provided an educational Webinar to the CML and GIST communities on March 18th entitled “Generic Imatinib: Gaining Perspective.”
Local Advocacy: LRG supports NJ Bill A-2337
Although GIST is among the few rare diseases that has available drug therapy treatment options, the cost of these lifesaving medications can sometimes impose deep financial hardship, depending on the terms of the patient’s [...]