In Loving Memory of Marilyn Lee Hoch
Marilyn Lee Hoch of Huron, Ohio passed away Saturday, May 16, 2015 in Stein Hospice Services, Sandusky. She was born November 22, 1932, in Marion, Ohio, the daughter of the late Lucille Thompson. Marilyn [...]
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
Former FDA Official Discusses Off-Label Use
In an online article, Peter Pitts, a former FDA associate commissioner, discussed the topic of off-label product claims by pharmaceutical companies. Off-label use in this case refers to using a medication for an intention [...]
Advocacy in Chile: An Update
Above Left to Right: Piga Fernandez, Health Minister Carmen Castillo Taucher, President Michelle Bachelet We reported previously on the advocacy work being in Chile to benefit patients who need high cost treatments for seriously ill [...]
On the Road with Milly: LRG Takes the Hill
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
On the road with Milly: Live from Washington – Training for the Hill
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]
Life Raft Group at CTTI: Rethinking Clinical Trials
This year, the Life Raft Group joined the Clinical Trials Transformation Initiative (CTTI) to help make clinical trials more efficient and productive and to help accelerate new treatments. CTTI is a consortium that brings [...]
On the road with Milly: LRG Advocates in Washington, DC
Live from Washington By Mildred Menos Hi Guys, Some of you may know me from hosting GDOLs (GIST Days of Learning in your city, that welcome phone call you received when you became a [...]
Michael Logan Christopher: A blessing to all who knew him
Michael Logan Christopher, 62, of Estes Park, CO went to be with his Jesus on Resurrection Sunday, April 5, 2015. He is survived by his wife of 37 years, Kristi, and their two sons, [...]
Cancerversary 10 Years – Josalin Dunn
Josalin Dunn is celebrating her ten year cancerversary. “Staying positive about my cancer isn’t always easy,... but I keep reminding myself that there are others who have it worse. I am blessed!”