Despite the challenges of Covid, the LRG has quickly developed new ways of working together virtually. We have kept afloat and served our community well during this dark year. These points of light show just how far we've come this year.
April Lopossa was faced with a daunting decision - to take Gleevec for her newly diagnosed GIST pre-surgery or wait until she delivered her unborn child.
The LRG was fortunate to get a few minutes with GIST specialist, Jonathan Trent, MD, Sylvester Comprehensive Cancer Center, who shared his experience with his patients over the past few months during the coronavirus pandemic.
Hope is an important resource during difficulty times. Mary Garland, Director of Communications for the LRG, shares her observations on hope.
Many GIST patients around the world struggle with getting the treatment they need to survive and thrive. Arun Krishnan’s story illustrates how collaboration between patient groups and doctors across the globe can affect patient survival.
Earlier this month, members of the LRG staff were invited to the Rutgers Cancer Institute of New Jersey by sarcoma specialist Dr. Roman Groisberg.
At 39-years-old, Fatema Suterwala was preparing to say goodbye to her husband and young son. Confused by this cruel twist of fate and wracked with pain, she was saved by a collaboration of medical [...]
The LRG Science Bulletin We will be sharing valuable real world data and real world evidence through our newest publication, the LRG Science Bulletin. LRG Science will include data from our Patient [...]
The Pediatric& SDH-Deficient GIST Consortium is committed to: Build a Consortium Accelerate Research Create Guidelines Create and Expand Clinical Trials Involve Patient Advocacy Groups [...]
The 15th Pediatric and Wildtype GIST Clinic, July 2017 Because of its rarity, the Pediatric/Wildtype population have fewer resources available to them, with a smaller pool of physicians and medical institutions that [...]
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