Virtual Life Fest 2020: GIST Oncologist Panel
Oncology and surgical GIST experts shared the latest trends, insights and surgical options in GIST, and then answered questions.
Welcome to Virtual Life Fest 2020
Even though we weren’t together physically for our biennial Life Fest celebration, we united to spread a message of hope and positive messages while raising GIST awareness across the globe.
Virtual Life Fest 2020: GIST Do It Walk
As part of our Virtual Life Fest celebration, we hosted a Virtual GIST Do It Walk on Sunday, July 12, 2020. The walk was held in memory of Ted Wolf, who lost his battle with GIST in 2018.
Blueprint & Deciphera Celebrate GIST Awareness Day 2020 – Galleries
Blueprint Medicines and Deciphera Pharmaceuticals celebrated GIST Awareness Day (GAD), July 13th, 2020, with Virtual Walks across the U.S. This year's GIST Awareness Day theme was #GISTHope.
RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor
Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.
GIST Awareness Day 2020
GIST Awareness Day, July 13th, 2020 All GIST Awareness Day Celebrations for 2020: Spain Colombia WolfStrong Team U.S. Mexico UK (Britian) Chile India Hungary Pharma The theme of GAD was #GISTHope. 2020 brought a [...]
GIST Awareness Day 2020 – Hungary
András Szekfü, of Budapest, Hungary, shares his GIST journey in this video for GIST Awareness Day, a day set aside to bring awareness of this disease.
Life Raft Group Launches GIST Cook Cookbook with Cooking Demonstration
The LRG is hosting a virtual cooking demonstration with Chefs Rosemary and Drew Gabbe of The Fruited Plain of Parsippany, NJ, to launch our newly released cookbook, GIST Cook.
Life Raft Group Collaborates on White Paper Published by Cancer Leaders
The Life Raft Group has been an integral part of a pan-cancer Working Group designed to determine consistent terminology around biomarker or mutational testing. The goal is to communicate to patients and the larger community in plain, patient friendly and consistent language what these terms mean, and how they impact on precision medicine.
LRG Webcast Series: GIST: How to Understand Your Pathology Report
In this webinar, we discussed how to interpret your pathology report. We covered interpretation of all parts of a pathology report, beginning with understanding the final diagnosis and diagnostic comment.