Comedy Fundraiser Raises over $4K for GIST Research March 8th, 2019 marked the night of our first GIST Laugh comedy show held at the Town Tavern in Washington, D.C. Our host for the show, [...]
GIST Day of Learning The Life Raft Group held a GIST Day of Learning (GDOL) in Los Angeles, California on February 18th, 2019. GDOLs are free, one-day programs that provide both education and support [...]
Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]
As part of our Faces of Courage Series, we are featuring a patient story on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each year [...]
Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top ten tips to navigate this journey toward thriving and surviving. 1. Get a [...]
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials & Immunotherapy Dr. Wilky, Director of Sarcoma Translational Research at the University of [...]
I never thought that I would be sitting at the same table with Senators from my country while voting for a law that will potentially dramatically change the lives of cancer patients in Chile. [...]
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]
