The LRG Welcomes New Leadership to Board of Directors
The Life Raft Group welcomes new leadership to the our Board of Directors.
Conversations with the LRG: A Conversation with the Rarest of the Rare
This webinar is the Life Raft Group's presentation in honor of Rare Disease Day. Rare disease day is an observance held on the last day of February to raise awareness for rare diseases and to help improve access to treatment and medical care.
The LRG Welcomes Dr. Neeta Somaiah to Medical Advisory Board
The Life Raft Group welcomes our newest Medical Advisory Board (MAB) member Dr. Neeta Somaiah of The University of Texas MD Anderson Cancer Center.
Navigating Survivorship Care
NCCN’s Dr. Crystal Denlinger and Dottie Shead reviewed general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care.
Clinical Trials Update – February 2022
In this summary, we continue highlighting recent clinical trials that are still recruiting in the U.S. which investigate potential treatments for GIST patients.
It’s Time to Tell the Stories – 2022
The Life Raft Group is celebrating our 20th anniversary as a nonprofit in 2022. For twenty years, our organization has been serving as a life raft for others navigating their GIST journeys.
La importancia del cuidador
Fundación GIST México GIST presentó 'La importancia del cuidador desde una perspectiva multidisciplinaria' en el Día Mundial del Cáncer.
Impact of L-carnitine on Imatinib-Related Muscle Cramps
Dr. Yoon-Koo Kang of the Asan Medical Center, Seoul, Korea, discusses the results of his team's study on the effect of L-carnitine in muscle cramps in GIST patients who are on imatinib.
Understanding sarcoma drug resistance one cell at a time
A new article published this month is presented by the University of Texas MD Anderson Cancer Center Department of Sarcoma Medical Oncology. Understanding Sarcoma Drug Resistance One Cell at a Time discusses that the focus in GIST research is moving from the current focus on just histology, proteomics, and tumor genetics enabled by tumor samples, cell lines and mouse models which are limited in rare cancers like SDH-deficient GIST.
Patient of the Month for January: Paul Nadolny
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Paul Nadolny shares his story.