Preparing for Flu Season 2022
Autumn has arrived, and with it comes the onset of Flu Season. Flu is a difficult illness for everyone, but for cancer patients, it can be devastating.
Patient of the Month for October: Phil Honsey
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. It's Time to Tell the Stories! Phil Honsey shares his story.
Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues
I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18 in-person in Washington, DC via a full scholarship. During this highly anticipated [...]
Jess Ly Runs for the Cause – A Half Marathon for the LRG & GIST Awareness
During the pandemic and in September 2020, Jess Ly was diagnosed with GIST cancer. The Life Raft Group (LRG) community, her GIST friends, and the cancer community welcomed her with open arms. Now she's running a half marathon to raise awareness and funds for #GISTresearch!
GIST Specialist Dr. Neeta Somaiah Shares on Life as a Sarcoma Expert
LRG Medical Advisory Board Member and GIST Specialist Dr. Neeta Somaiah shares on her life as a sarcoma specialist.
Time To Tell The Stories – Donald Prestage
The Life Raft Group is celebrating our 20th anniversary as a nonprofit in 2022. Our Time to Tell the Stories features honor this legacy. GISTer Donald Prestage shares his story.
New Private Facebook Discussion Groups
The Life Raft Group is launching two new private Facebook Support Groups for patients and their caregivers. These two groups are designed to provide a safe forum to discuss specific concerns in a closed [...]
Global Advocacy News – SIMPOSIO ONCOLATINO
PIGA FERNÁNDEZ, LRG GLOBAL CONSULTANT, GLOBAL GIST DIR., EXEC. DIRECTOR FUNDACIÓN GIST CHILE I was invited to participate in this symposium organized by the Civil Society of Uruguay, together with almost 30 [...]
Collaborative Effort Produces Position Paper on Need for Advanced Biomarker Testing
The Life Raft Group was recently part of team of authors on a collaborative position paper entitled 'Undetected KIT and PDGFRA mutations: an under-recognised cause of gastrointestinal stromal tumours (GISTs) incorrectly classified as wild-type published' in Pathology: The Journal of the Royal College of Pathologists of Australia.
Let the Buyer Beware: Challenges with Online Pharmacies
Recent articles have shed light on an issue of concern about counterfeits for patients who take imatinib myselate as part of their treatment for GIST.