News

A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium

The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.

By |2019-09-23T14:37:20-04:00September 21st, 2018|News, Pediatric GIST, Research|
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Real World Evidence in Action: The LRG Research Model

Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges regarding patient survival. Randomized clinical trials (RCTs) driven by lab-based research have been the gold standard for identifying new [...]

By |2019-02-20T08:46:19-05:00August 15th, 2018|News, Research|
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The Werners – Finding the New Normal Living with Wildtype GIST

Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.

By |2019-11-08T11:05:18-05:00June 29th, 2018|Member Stories, News, Newsletter|
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New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy

Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]

By |2019-07-03T10:48:28-04:00June 29th, 2018|GIST Education, Mutational Testing, News, Newsletter|
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GIST Updates from the ASCO Annual Meeting 2018

Executive Director, Norman Scherzer, and Real World Evidence Data Scientist, Dr. Yu Wang, of the Life Raft Group recently attended the ASCO (American Society of Clinical Oncologists) 2018 meeting in Chicago. Dr. Wang describes [...]

By |2020-05-19T10:25:20-04:00June 18th, 2018|Clinical Trials, News, Research|
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ISPOR Conference Sheds Light on Patient Experience Data

In May 2018, the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), invited the Life Raft Group to the ISPOR 10th Patient Representatives Roundtable during the ISPOR 2018 conference in Baltimore, MD. Dr. Yu [...]

By |2018-10-29T13:44:42-04:00June 15th, 2018|News, Patient Data|
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Deciphera Pharmaceuticals Announces the Start of Phase 3 Clinical Trial with DCC-2618 in GIST

On January 4th, 2018 Deciphera Pharmaceuticals, Inc, announced the start of the Phase 3 INVICTUS trial. This randomized trial is for 4th line GIST patients that have failed (or are intolerant) the [...]

By |2018-10-29T13:46:27-04:00January 9th, 2018|Clinical Trials, News|
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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
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The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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