15 Years-15 Wishes for 2018 from the Life Raft Group
As we celebrate our 15th year as a non-profit, we at the Life Raft Group would like to share 15 wishes we have for the New Year. Won’t you help us make [...]
It’s a Journey: Our Experience on Clinical Trials
By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year [...]
Why Do Cancer Patients Join Clinical Trials?
At the most basic level, cancer patients join clinical trials because of perceived value and perceived cost. In this context, perceived cost refers to more than just financial cost, although that is important. Perceived [...]
Global GIST Advocates Convene at LRG Headquarters
The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]
GIST Presentations and Posters at CTOS 2017
The following is a recap of the presentations and posters from the CTOS conference held in Hawaii, with commentary by David Josephy. Dr. Michael Heinrich, David Josephy and Norman Scherzer CTOS 2017 Presentations [...]
A Message from GISTer Bella Rocco
About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even [...]
Fundacion GIST Chile Expands Advocacy Efforts
On Saturday November 25, GIST Chile, together with FUCOG (Gynecological cancers) held an education session for health related students, patients and caregivers. This was the first collaborative activity in looking forward to expand our [...]
Coping With Grief and Loss
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or her own grief process in their own way, but all of us share [...]
Social Media Helps Rescue Croatian Patient
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access [...]
NIH Clinic Combines Research, Knowledge, and Hope
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]