What does cancer feel like?
I’ve been struggling to answer that question since I was diagnosed with a rare, malignancy known as gastrointestinal stromal tumor on February 18, 2011. I cannot remember what I am wearing right now without looking [...]
LRG researchers publish ‘cell sleep’ study
Members of the Life Raft Group Research Team continue to publish results of promising studies aimed at finding a cure for GIST. The latest reflects the collaboration that guides its efforts.
Alianza GIST meeting to shape future
The Alianza GIST 2013 meeting in Miami marked an important milestone for GIST advocates as they embarked on a plan to build a self-sustainable organization in Latin America. “We were energized by the meeting and [...]
New Horizons makes a splash in Miami
New Horizons Participants in Miami, Fla. The 2013 New Horizons GIST conference was held at the Hilton Miami Downtown Hotel in Miami, Florida from Wednesday, June 5th to Friday, June 7th. The conference [...]
Sosipatros Boikos takes helm at NIH Clinic
Dr. Sosipatros Boikos, a graduate of University of Crete in Greece, very early and while he was a first year medical student, developed an interest in cancer genetics. After graduating from medical school, he came to the National Institutes of Health as a Visiting Research Fellow to work on the genetics of Wildtype gastrointestinal stromal tumors—those GIST tumors without a KIT or PDGFRA mutation—under the supervision of Dr. Constantine Stratakis, the researcher who identified Carney-Stratakis Syndrome.
Graduating, Birth, Marriage. What Can’t GISTers do?
Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.
Scott Russell takes the scenic route to fundraising
In early June, Scott Russell, husband of GISTer Carol, participated in the Fourth Annual Allegheny 100 Backpacking Challenge held by the scenic Pennsylvania Allegheny National Forest Chapter of the North Country Trail.
Chris Skiff Defies Odds by Running in California Marathon
When Chris Skiff was in elementary school, he “felt the urge to run.” And he has been running ever since. Even after being diagnosed with GIST.
Swiss Meeting Marks Group’s 10th Anniversary
This year’s Swiss GIST meeting on April 19 in Zurich was a special event. The board had started to plan early, as it wanted to offer a special program to commemorate the tenth anniversary. The [...]
Clinical Trials – Reforms Discussed to Meet Patient Needs
The conversations about improving clinical trials to better meet the needs of cancer patients continue, with two noteworthy arguments set forth recently. Both arguments address the need to rethink the design of clinical trials.